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Personal Stories


Here you’ll find participants’ accounts of hepatitis C diagnosis, living with hepatitis C, treatment and cure. The people and stories were carefully selected to highlight diversity in backgrounds and experiences. While this website is not able to tell every possible story of hepatitis C and treatment in Australia, it can show just how different people and their experiences are. In the stories can be found details of the many important concerns and circumstances our participants negotiated in living with and having treatment for hepatitis C.

The stories presented here rely on participant reports of overdose. Some experiences may not conform to medical definitions of overdose, and some responses described may not reflect medical advice.

While these narratives were written from the interview transcripts and rely on participants’ own words, some aspects have been paraphrased to improve coherence and readability. In making these changes we have worked hard to remain faithful to the original meaning and intentions. Some experiences may also be presented in other sections of the website, using more detailed quotations.

Brooke was diagnosed with hepatitis C in the late 1990s. On receiving her diagnosis, she worried that she might die and that her children would have to grow up without her.
First diagnosed with HIV and hepatitis C in 1991, Derek was later diagnosed with hepatitis C again two further times (in 1998 and 2012).
Lou works and studies part-time
In 1994, when she was still living in Egypt, Rashida was diagnosed with hepatitis C
Sana was first diagnosed with a ‘blood infection’ in India in about 2008, before being diagnosed with hepatitis C in Australia in 2019
Stuart can’t remember exactly when he was diagnosed with hepatitis C, but thinks he acquired it through a childhood medical procedure