After Cure: Health and Life in General
NOTE: Quotes are presented word for word apart from minor editing for readability and clarity. Identifying details have been removed. Square brackets show text that has been added or, where ellipses (three dots) appear, show that text has been removed. For example, ‘I had the nurses explaining to me, like, how easy it was […to have] treatment and I went to the [hospital liver clinic] and there was a doctor … can’t think of her last name, really nice lady […] Yeah, she explained everything to me and said it was a good time for me to do it now and, yeah, [I] just stuck with her and got that done.’
The people interviewed for this website express a range of views about their health and vitality after hepatitis C treatment (see also, Reflecting on experiences of treatment and cure). For some, treatment was a positive experience that led to feelings of optimism about the future and ongoing changes in how they manage their health and wellbeing. For others, treatment experiences didn’t have long-term significance and hepatitis C was simply something they no longer considered relevant. While treatment may have cured them of hepatitis C, many say that they have ongoing concerns about the impact of the virus on their health, and they engage in routine hepatitis C–related testing and monitoring. Some participants who inject drugs express concerns about reinfection, and they adapt their injecting practices to reduce this risk. Some discuss hepatitis C as one of a number of health issues that they’ve continued to manage since treatment. Related to this, some say that post-treatment life could be improved by access to more support (see also, Dealing with stigma and discrimination). A few people had such positive experiences of treatment that they engage in informal and formal advocacy and peer work to improve treatment access and wellbeing for others (see also, Perspectives on the new hepatitis C treatment).
Read on for details about health after hepatitis C treatment and cure.